celiac disease or intolerence? all or nothing?

by Jason
(Anchorage, Alaska USA)

l had an endoscopy that showed scalloping in the small intestine & the doctor said the pathology results from my biopsy showed celiac disease. He asked me to come back and give more blood, which i did and it is at the lab now. Why would I give blood again if it already showed celiac? - Is there a difference between intolerance and disease? is it a gradual scale or is celiac disease/gluten intolerance an all or nothing thing?

if a small mistake is made in a gluten free diet i.e. a couple of drops of soy sauce compared to a big helping of pasta, is the damage less severe or is it a all or nothing thing re: continued damage?

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Crohns, Not Celiacs
by: Anaheim Hills

After reading all the comments here, I'm not sure WHAT to believe!

I don't have Celiacs Disease, but my endoscopy confirmed Crohns. Now, I've read and have been told that there's no cure for Crohns Disease. I've ALSO read from other Crohns sufferers that a gluten free diet has helped.

My question is this: since there's no link from gluten to Crohns, isn't limiting my diet to "partially gluten free" going to show some improvement in how my stomach feels?

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celiac disease or intolerence? all or nothing?
by: kjkoppel

I would like to see proof from "Anonymous" that people with mild celiac intolerance who occasionally ingest small amounts of gluten (Chinese restaurant, soy sauce flavoring) are going to be (seriously) harmed in the future or irreparably damaged. If that were true than the "gut lining" would never heal, even after going on the gluten free diet.

Please stop the hysteria and over reacting.

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There is no such thing as "can tolerate accidental gluten ingestion"
by: Anonymous

People should be careful when making comments like

"I believe that there is too much hysteria regarding slight digestion of gluten - people who are not severely affected can tolerate (accidental) gluten digestion and can remain healthy using intelligent, practical reasoning regarding gluten"

Because no matter what amount of gluten you consume and no matter whats the level of reaction you have, the damage caused to your gut lining is still happening. This can also cause problems in the future, in that your gut lining may not be able to recover which in itself leads to other problems, like secondary problems due to malabsorption of nutrients and also tumours.

The previous contributor does state this may anger people and you can see why.

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A Crumb or a Box?
by: Anonymous

The assertion "just one crumb
by: Anonymous - Unfortunately, the damage is the same whether you eat a crumb or an entire box of crackers." is incorrect.

It is almost impossible to maintain a completely ZERO gluten free diet. Celiac disease seriously compromises the health of some people while others are mildly affected. Obviously, the digestion of any amount of gluten is to be avoided by celiac people, but it should be obvious that eating a crumb is not the same as consuming an entire box of crackers.

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celiac
by: kjkoppel@gmail.com

My wife & I were diagnosed a few years apart - an amazing coincidence to both have celiac. She was in her mid 60's & I am in my mid 70's. We both had had unexplained weight loss & other minor symptoms that cleared up after going on the diet.

Obviously there are degrees of gluten intolerance.

If we accidentally digest gluten - or if I eat Chinese food with soy sauce containing gluten, etc, we do not have side effects.

My wife's last endoscopy was fine and I expect the same when I next have mine. I know this will anger others with celiac, but I believe that there is too much hysteria regarding slight digestion of gluten - people who are not severely affected can tolerate (accidental) gluten digestion and can remain healthy using intelligent, practical reasoning regarding gluten.

By the way La Choy soy sauce is gluten free & Walmarts soy sauce (a bargain) is gluten free.


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just one crumb
by: Anonymous

Unfortunately, the damage is the same whether you eat a crumb or an entire box of crackers.

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