Celiac Disease Stories

The symptoms of celiac disease are so varied that it makes it difficult to diagnose. Therefore many people end up suffering for years before they finally find out what is wrong with them.

Does this sound like you? Did you have multiple WRONG diagnoses before you eventually found out what was to blame?

This is where you can "pay it forward" and help others by telling your own story. You never know who it might help.

If you don't have a diagnosis yet, but think a gluten free diet could help you, do read through the articles below and see if anyone else's story hits home and sounds just like what you are going through. 

Think of this page as YOUR page, to talk to each other and offer virtual support to other people facing the same condition as you.

Share your celiac disease story

It is easy to join in, just fill out the form below and click on the button at the end. This will send me an e-mail so that I know you have posted and I will then publish your page to the site. Please note that if you just write a line or two I won't be able to publish it, as it could adversely affect the ranking of the site and prevent other people from finding it and getting help for the condition.

Go on, don't be shy. 

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Read other peoples stories

Click below to see contributions from other visitors to this page...

Warts on my hands, elbows, and knees, NO stomach problems, SELF DIAGNOSED with celiac disease 
Shortly after my 19th birthday ( I am now 23) I woke up one morning with these "bubbly-like blisters, wart-like" on the palms of my fingers, and knuckles. …

Be your own health advocate! 
After 18 or more years (perhaps a lifetime!) of dealing with what was diagnosed as "Irritable Bowel Syndrome" I finally received confirmation that I have …

The celiac circle of disease 
I am 42 and two years ago was diagnosed with the Non-alcoholic fatty liver disease as well as Malabsorption Syndrome AND Steatorrhea. Yeah for me huh! …

Anyone been diagnosed WHILST pregnant?! 
I've suffered from what I thought was IBS for about 7 years and always jumped up and down to see a specialist with no result. However now that I am pregnant …

Finally a diagnosis 
My son Justin has been loosing weight since he was 17 years old. Sporadically, I would take him to doctors and they would shrug their shoulders and say …

still unsure 
I am 41 years old and have been having stomach problems since about 12. Over past year the symptoms have worsened, including swelling in the upper abdomen …

Type 1 diabetic with newly diagnosed celiac disease 
With ever increasing fatigue, very low energy, some dizziness and shortness of breath I thought I was having heart issues and went to my doctor. The blood …

Suffered with undiagnosed celiac for 20 years 
Well, I first noticed a change in my bowels in my early 20's. Doctors just told me I had IBS and I had a nervous and anxiety condition. I was, and had …

Why is this happening to me? 
My story starts all the way back in my freshman year of high school. I started feeling sick to my stomach a lot and found myself vomiting almost on a daily …

Long Road to Overcoming Celiac Disease 
I've always had significant digestive problems my entire life. In fact, when I was an infant, my parents lovingly called me "diarrhea-baby". By the …

My daughters have Celiac but not the typical symptoms 
When my daughter was in kindergarten she always had tummy aches. I thought it was because she was a very shy child. She was always healthy looking and …

Had Gallbladder removed at age 15  
My daughter, now 17, has finally found the reason for her problems. She started having stomach problems in about the 7th grade. Eating breakfast made …

Gluten: The silent Enemy! 
During the summer of 2010 I had begun to feel nauseous constantly. It became a chronic condition and I didn't mention it to my parents because I didn't …

Extreme disability
Unable to Walk without Severe Pain
 
After years of pain and various medical procedures / medications, I am finally a self-diagnosed gluten survivor. I was certain that I would be in a wheelchair …

Diagnosed with Gastritis - but I think I have Celiac 
I am only 21, but I have suffered from a "sensitive stomach" and chronic constipation my whole life. I thought my body just didn't function right, and …

Thank God for chiropractors 
My name is Melissa. I am a 25-year-old stay at home mother of two wonderful children. I started to realize something was a little off during my first …

Neuropathy (Pins and Needles on your feet, legs, arms and skin) 
Long story, be forewarned. My mother, an R.N., was diagnosed with Celiac Disease when she was in her late 50's or early 60's. She's still alive at 87, …

Daily hives at age 38 my only symptom of Celiac 
Do not confuse my "hives" with the Herpatitus Dermatitus that is common with Celiac Sprue, I had hives-head to toe daily from August until November! My …

Finally, answers....... 
My name is Laura Bunyard and I was diagnosed with Celiac Disease in 2000. I was born in 1960 to parents, who it was later determined, had food allergies. …

Gluten poisoning 
I have been gluten free for 7 years. I started to feel ill when I was about 13, I got terrible food poisoning in Indonesia and was bed ridden for two …

Celiac child 
My daughter Holly is now 9 months old and finally she is fitting into 3-6 months clothes. It all started with her not putting on weight, even losing at …

4 inches of Small Intestine removed 
I too was born in 1960 (Nov.) and I too weighed 5 lbs. at birth. While growing up, I was extremely thin. My parents attributed it to being a "picky eater". …

Coeliac and blood sugar levels 
When I was born in 1968 no one really knew what coeliac disease was. When it came time to wean me, my mum used Farley's rusks and milk, like her mum had …

Gluten Intolerance and uveitis, episcleritis and iritis 
This is my husband's story. Around his mid 40s, he started getting eye conditions called uveitis, episcleritis, and iritis. His eyes would go red and …

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I thought I had a yeast infection 
After a horrible pregnancy, during which I had severe nausea, kidney stones and an unnecessary appendectomy I was ready to get on with my life as a new …

My Gluten Free Diet Not rated yet
Hi all, I hope this might help you ... Even though I have not being diagnosed as having Celiac Disease, I realised that my symptoms are most definitely …

A true experience with what is often considered a "fad diet" Not rated yet
I walked into science class, expecting another typical period of learning new concepts and completing practice problems. However, as I sat down in the …

Celiac Awareness Not rated yet
I have recently been diagnosed with celiac disease. Prior to this life changing diagnosis, I went through life in ignorant bliss. As an illustration, …

Lifetime of medical issues....finally diagnosed with celiac disease Not rated yet
In my early teens I had problems with depression. My mother told me that no one else in the family has problems with depression so there must be something …

How I got coeliac disease Not rated yet
I have always had bad stomach cramps and that, but the doctors always told me it was stomach migraines. So I would have meds for it and it went away for …

4 years of misery Not rated yet
i started feeling sick 4 years ago. we were on vacation in nj and all of a sudden i felt the urge to vomit. Not just normal but it felt like it came from …

Lupus and Celiac Disease Not rated yet
Hi,I'm a 39-year-old woman who was diagnosed with SLE (Lupus) 8 years ago. But in my heart, didn't believe it. Despite being tested and retested in addition …

Now I finally know
what is wrong with me
 Not rated yet
First, let me begin by saying that my mother had colon cancer twice, so did my brother, and my maternal Grandfather died from stomach cancer in the 50's, …

Navon's Story Not rated yet
I am the mother of 6 healthy kids. One though is different than the rest. He has Celiac disease. Not only does he have celiac disease but he also has Chrones …

Terrible Aches and Pains Not rated yet
I first noticed my symptoms when I was in my early 20's, wanting to keep my weight down, I would go to the gym every other day (like only a single person …

A myriad of symptoms Not rated yet
In August of 2009, my family and I moved to Germany, the home of thousands of bakeries. We all love bread, so I made many trips to the local bakeries …

painful neuropathies, weight loss, malabsorbtion, yet it's all in my head they say Not rated yet
It started 8 months ago. I woke up with thrush (over a teaspoon full of curd scraped off my tongue after eating a pizza hut pizza the night before). Little …

Living Gluten and Dairy Free Not rated yet
It's hard enough to live without gluten, but even more difficult without dairy as well. I was diagnosed as lactose intolerant a little over two years …

anxiety fatigue depression and thyroid autoimmune disease Not rated yet
It all came to a head this summer with our daughter, now 22. Our integrative M.D. had been suggesting to her for years that gluten was behind a lot of …

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- - Celiac Disease Stories



  

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