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Share your celiac disease or gluten intolerance story

tell-your-story (7K) Celiac disease symptoms are so varied it can be difficult to diagnose. I have heard stories of people going to their doctor for up to 10 years before a diagnosis is made!

By this time a patient can be really sick and worried about what may be wrong with them.

Did you have trouble getting diagnosed? Or are you gluten intolerant? What were your symptoms? The classic gastro problems or something more vague?

Reading about what others have gone through can help, so why not share your story with fellow visitors to the-gluten-free-chef.com by creating your own page on this site. It is easy, just fill in the new style form below. Once your page is life others can comment, offer help or ask questions.

The ladies below shared their stories before this new feature was available. Now it is even easier to help others.

Let Val tell you about her daughter's story

You will find more stories below the form. Thank you for sharing.


Share your story

Do you follow a gluten free diet? Was it difficult getting a diagnosis? Will your story help others?

Fill in the form below to get your own story on the web.

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Read other peoples stories

Click below to see contributions from other visitors to this page...

Suffered with undiagnosed celiac for 20 years  starstarstarstarstar
Well, I first noticed a change in my bowels in my early 20's. Doctors just told me I had IBS and I had a nervous and anxiety condition.

I was, and ...

Long Road to Overcoming Celiac Disease  starstarstarstarstar
I've always had significant digestive problems my entire life. In fact, when I was an infant, my parents lovingly called me "diarrhea-baby".

By the ...

Had Gallbladder removed at age 15   starstarstarstarstar
My daughter, now 17, has finially found the reason for her problems. She started having stomach problems in about the 7th grade. Eating breakfast made ...

Gluten: The silent Enemy!  starstarstarstarstar
During the summer of 2010 I had begun to feel nauseous constantly. It became a chronic condition and I didn't mention it to my parents because I didn't ...

I thought I had a yeast infection  starstarstarstarstar
After a horrible pregnancy, during which I had severe nausea, kidney stones and an un-neccessary appendectomy I was ready to get on with my life as a ...

struggling with new diagnosis of coeliac disease  starstarstarstarstar
I have recently found out that i have coeliac and i'm a bit worried how it will affect my life i'm only 27 and have had IBS symptoms for about 6 years....

Daily hives at age 38 my only symptom of Celiac  starstarstarstarstar
Do not confuse my "hives" with the Herpatitus Dermatitus that is common with Celiac Sprue, I had hives-head to toe daily from August until November! My ...

Finally, answers.......  starstarstarstarstar
My name is Laura Bunyard and I was diagnosed with Celiac Disease in 2000. I was born in 1960 to parents, who it was later determined, had food allergies....

Gluten poisoning  starstarstarstarstar
I have been gluten free for 7 years.

I started to feel ill when I was about 13, I got terrible food posioning in Indonesia and was bed ridden for two ...

Celiac child  starstarstarstarstar
My daughter Holly is now 9 months old and finally she is fitting into 3-6 months clothes. It all started with her not putting on weight, even losing at ...

4 inches of Small Intestine removed  starstarstarstarstar
I too was born in 1960 (Nov.) and I too weighed 5 lbs. at birth. While growing up, I was extremely thin. My parents attributed it to being a "picky eater"...

Coeliac and blood sugar levels  starstarstarstarstar
When I was born in 1968 no one really knew what coeliac's was. when it came time to wean me, my mum used Farleys rusks and milk, like her mum had done ...

Why is this happening to me?  starstarstarstarstar
My Celiac Story.

My story starts all the way back in my freshman year of high school. I started feeling sick to my stomach a lot and found myself vomiting ...

suddenly diagnosed with celiac disease  starstarstar
My name is Cassanda. I am a mother of three kids and I have recently been diagnosed with Celiac...not ever knowing anything about this, I went to the doctor ...

Lupus and Celiac Disease  Not rated yet
Hi,I'm a 39 year old woman who was diagnosed with SLE (Lupus) 8 years ago. But in my heart, didn't believe it.

Despite being tested and retested in ...

My daughters have Celiac but not the typical symptoms  Not rated yet
When my daughter was in kindergarten she always had tummy aches. I thought it was because she was a very shy child. She was always healthy looking and ...

My Boxer had Severe Ear Infections  Not rated yet
My 1 1/2 year old boxer has had 8 bad ear infections. We have tried everything to help her.

Finally, our vet had a visiting vet who suggested she had ...

Black Spots on Face and Neck From Gluten Intolerance  Not rated yet
I did not know I was gluten intolerant until I was 40 years old. I lived a very uncomfortable life of not being able to enjoy cakes or pie or bread or ...

Extreme disability
Unable to Walk without Severe Pain
  Not rated yet
After years of pain and various medical procedures / medications, I am finally a self-diagnosed gluten survivor.

I was certain that I would be in ...

Now I finally know
what is wrong with me
  Not rated yet
First, let me begin by saying that my mother had colon cancer twice, so did my brother, and my maternal Grandfather died from stomach cancer in the 50'...

Diagnosed with Gastritis - but I think I have Celiac  Not rated yet
I am only 21, but I have suffered from a "sensitive stomach" and chronic constipation my whole life. I thought my body just didn't function right, and ...

Navon's Story  Not rated yet
I am mother of 6 healthy kids. One though is different than the rest. He has Celiac disease. Not only does he have celiac disease but he also has Chrones ...

Terrible Aches and Pains  Not rated yet
I first noticed my symptoms when I was in my early 20's, wanting to keep my weight down, I would go to the gym every other day (like only a single person ...

Will going gluten free help my diabetes  Not rated yet
I am reading this web page because I have suffered with Type II Diabetes for a very long time. It seems like nothing I do works.

I have tried to ...

Thank God for chiropractors  Not rated yet
My name is Melissa. I am a 25 year old stay at home mother of two wonderful children.

I started to realize something was a little off during my first ...

Diagnosed Coeliac Disease  Not rated yet
Im forty two years old and I have just been diagnosed as having coeliacs disease. This has came out of left field for me because for all this time I have ...

irritable bowel or gluten intolerance  Not rated yet
Having suffered for over a decade with Irritable Bowel Syndrome, experiencing some excruciating pain, I have now given up with the advice of Doctors and ...

Neuropathy (Pins and Needles on your feet, legs, arms and skin)  Not rated yet
Long story, be foreworned.

My mother, an R.N., was diagnosed with Celiac Disease when she was in her late 50's or early 60's. She's still alive at ...

A myriad of symptoms  Not rated yet
In August of 2009, my family and I moved to Germany, the home of thousands of bakeries.

We all love bread, so I made many trips to the local bakeries ...

The long road to the Mystery of Celiac   Not rated yet
I have been in and out of tests for the last 8 years, since my galbladder was taken out. Not sure if that caused more of the symptoms to get louder or ...

painful neuropathies, weight loss, malabsorbtion, yet it's all in my head they say  Not rated yet
It started 8 months ago.

I woke up with thrush (over a teaspoon full of curd scaped off my tongue after eating a pizza hut pizza the night before).

Little ...

Living Gluten and Dairy Free  Not rated yet
It's hard enough to live without gluten, but even more difficult without dairy as well.

I was diagnosed as lactose intolerant a little over two years ...

I nearly died from undiagnosed celiac disease  Not rated yet
Actually, the finality of undiagnosed Celiac is what kills. You all have heard this before, but I am one of those who came within a breath of death due ...

Irritable bowel or Celiac  Not rated yet
About five years ago I started have terrible gas. It was so bad that it was embarrassing to be around other people. Even after it would pass it would ...

anxiety fatigue depression and thyroid autoimmune disease  Not rated yet
It all came to a head this summer with our daughter, now 22.

Our integrative M.D. had been suggesting to her for years that gluten was behind a lot ...

Why am I always ill?  Not rated yet
I had a my Gall Bladder removed 12 years ago, and ever since then I have had nothing but problems.

Finally after a stay in hospital for the pain, which ...

Symptoms (Pain in abdomen my story)  Not rated yet
In early October I suddenly got this terrible pain in my abdomen, I was in hospital for 4 nights as the surgeons thought it was my appendix, but it wasn'...



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Copyright© 2007-2012. Please note I am not a doctor, just a fellow sufferer of coeliac disease.
Therefore no information on this site should be taken as medical advice.