Share your celiac disease or gluten intolerance story

tell-your-story (7K) Celiac disease symptoms are so varied it can be difficult to diagnose. I have heard stories of people going to their doctor for up to 10 years before a diagnosis is made!

By this time a patient can be really sick and worried about what may be wrong with them.

Did you have trouble getting diagnosed? Or are you gluten intolerant? What were your symptoms? The classic gastro problems or something more vague?

Reading about what others have gone through can help, so why not share your story with fellow visitors to the-gluten-free-chef.com by creating your own page on this site. It is easy, just fill in the new style form below. Once your page is life others can comment, offer help or ask questions.

The ladies below shared their stories before this new feature was available. Now it is even easier to help others.

Read Kimberley's story.
Let Val tell you about her daughter's story

You will find more stories below the form. Thank you for sharing.


Share your story

Do you follow a gluten free diet? Was it difficult getting a diagnosis? Will your story help others?

Fill in the form below to get your own story on the web.

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Read other peoples stories

Click below to see contributions from other visitors to this page...

Gluten poisoning  starstarstarstarstar
I have been gluten free for 7 years.

I started to feel ill when I was about 13, I got terrible food posioning in Indonesia and was bed ridden for two ...

Celiac child  starstarstarstarstar
My daughter Holly is now 9 months old and finally she is fitting into 3-6 months clothes. It all started with her not putting on weight, even losing at ...

4 inches of Small Intestine removed  starstarstarstarstar
I too was born in 1960 (Nov.) and I too weighed 5 lbs. at birth. While growing up, I was extremely thin. My parents attributed it to being a "picky eater"...

Coeliac and blood sugar levels  starstarstarstarstar
When I was born in 1968 no one really knew what coeliac's was. when it came time to wean me, my mum used Farleys rusks and milk, like her mum had done ...

suddenly diagnosed with celiac disease  starstarstar
My name is Cassanda. I am a mother of three kids and I have recently been diagnosed with Celiac...not ever knowing anything about this, I went to the doctor ...

Starting the process of getting a diagnosis of possible Celiac  Not rated yet
I went to the Dr. today and was very shocked when the LPN asked if I knew where my ancestors came from. Since I didn't grow up around my father I had ...

irritable bowel or gluten intolerance  Not rated yet
Having suffered for over a decade with Irritable Bowel Syndrome, experiencing some excruciating pain, I have now given up with the advice of Doctors and ...

Neuropathy (Pins and Needles on your feet, legs, arms and skin)  Not rated yet
Long story, be foreworned.

My mother, an R.N., was diagnosed with Celiac Disease when she was in her late 50's or early 60's. She's still alive at ...

A myriad of symptoms  Not rated yet
In August of 2009, my family and I moved to Germany, the home of thousands of bakeries.

We all love bread, so I made many trips to the local bakeries ...

The long road to the Mystery of Celiac   Not rated yet
I have been in and out of tests for the last 8 years, since my galbladder was taken out. Not sure if that caused more of the symptoms to get louder or ...

Celiac Misdiagnosed As Cancer - Parent Fights School District  Not rated yet
Amanda Brown, of Plainview, works as a student teacher at an elementary school during the week. She also teaches Zumba, a fitness class that combines exercise ...

MY Celiac Life  Not rated yet
Ever since I could remember I was always the gassy kid, I farted often and I could go a WEEK without going poo.

I always was tired but I was very energetic,...

painful neuropathies, weight loss, malabsorbtion, yet it's all in my head they say  Not rated yet
It started 8 months ago.

I woke up with thrush (over a teaspoon full of curd scaped off my tongue after eating a pizza hut pizza the night before).

Little ...

Daily hives at age 38 my only symptom of Celiac  Not rated yet
Do not confuse my "hives" with the Herpatitus Dermatitus that is common with Celiac Sprue, I had hives-head to toe daily from August until November! My ...

my experience of living gluten free  Not rated yet
Hi I am Chris and I qualified as a chef way back in 1989. I found out I had a wheat intolerance in 1999, after months of being lethargic and having a bloated ...

Living Gluten and Dairy Free  Not rated yet
It's hard enough to live without gluten, but even more difficult without dairy as well.

I was diagnosed as lactose intolerant a little over two years ...

I nearly died from undiagnosed celiac disease  Not rated yet
Actually, the finality of undiagnosed Celiac is what kills. You all have heard this before, but I am one of those who came within a breath of death due ...

Finally, answers.......  Not rated yet
My name is Laura Bunyard and I was diagnosed with Celiac Disease in 2000. I was born in 1960 to parents, who it was later determined, had food allergies....

Irritable bowel or Celiac  Not rated yet
About five years ago I started have terrible gas. It was so bad that it was embarrassing to be around other people. Even after it would pass it would ...

anxiety fatigue depression and thyroid autoimmune disease  Not rated yet
It all came to a head this summer with our daughter, now 22.

Our integrative M.D. had been suggesting to her for years that gluten was behind a lot ...

Why am I always ill?  Not rated yet
I had a my Gall Bladder removed 12 years ago, and ever since then I have had nothing but problems.

Finally after a stay in hospital for the pain, which ...

my story of anorexia   Not rated yet
it started about 2 months ago when I just started watching my calorie intake and about 3 weeks ago I started eating a lot less that I am used to eating....

Symptoms (Pain in abdomen my story)  Not rated yet
In early October I suddenly got this terrible pain in my abdomen, I was in hospital for 4 nights as the surgeons thought it was my appendix, but it wasn'...


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Allergy or Intolerance?

Is Coeliac disease an allergy or a food intolerance? The facts.

what is the difference?

Celiac and anorexia

Not eating and loosing weight dramatically may be due to celiac not anorexia.

Find out why

Depression and celiac disease

Are you down in the dumps about your condition?

Find out why

Problems with celiac in pregnancy?

If you are pregnant, or want to be, your celiac disease could be causing problems.

Find out why



Copyright© 2007. Please note I am not a doctor, just a fellow sufferer of coeliac disease.
Therefore no information on this site should be taken as medical advice.