Anyone been diagnosed WHILST pregnant?!

I've suffered from what I thought was IBS for about 7 years and always jumped up and down to see a specialist with no result. However now that I am pregnant my symptoms are simply unbearable, what seems like every meal I was doubled over in agony - even throughout the night with severe abdominal pain and "toilet troubles" whether it be loose or constipation. So after weeks of this, I was given a blood test for Coeliac which came back positive, I now await an Endoscopy (Camera into my stomach) to confirm, although I'm told the bloods are about 98% accurate.

Silly thing to do researching on the internet as the doctors don't seem too bothered to get me in (I had to fight for several weeks and hours on the phone to get my appt as they "are busy" even though they acknowledge I'm URGENT - but the good old internet tells me that with me continuing to eat gluten as the doctors have told me to do could be harmful to baby and result in low birth weight etc etc.

I'm just so worried and still in pain every day and since I'm now 24weeks and just getting Endoscopy next Wed - I feel that I am at a loss as to how to make sure my baby is healthy!

I wondered if any other mums had been through Coeliac whilst pregnant or even closer to my situation been diagnosed whilst pregnant as most forums I am reading are already eating gluten free by the time they have fallen pregnant!

Thanks in advance!


Carol responds...

Jo, your story sounds similar to my sister-in-law, Jenny's story. She wrote an article for the site which you can find here...

Pregnancy and celiac disease

I am afraid it is important to continue eating gluten until you have had your endoscopy. :( If you go gluten free then the evidence of the condition can disappear giving an inconclusive diagnosis.

If your test is next week then I would continue as normal for the next few days. Once you have had the test then discontinue eating all foods containing gluten straight away. The results will then not be affected.

May I wish you all the best with your health and your baby.



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Nov 15, 2012
Yes! Me! I know what your going through...
by: Jenny

Hi Jo,

I have been where you are. My guess, you are feeling extremely ill, bloated, kicked to smitherin's and are not daring to leave the house...

I know that's how life was with me. But, it is not how my life is now, and I have never felt better. You will feel this too, I promise.

The endoscopy is OK, it's not on my top 10 list of things to do, but the worst you'll have to do is fight your gag reflex. I converted that afternoon to a gluten free diet, and I've never looked back.

But in all this time, my baby was well and healthy. Keep a monitor on your baby's movements, play games with them (my favourite was to splash water in the bath!), and start to build your bond. You will benefit from it and it will ease your mind.

There is also good news! You will get to see a dietician, (if you don't get this offered request it!) and they will provide you with lots of guidance material. You'll also get free sample packs to sign up from. But most importantly, they will advise you of your point allocation for your perscriptions.

My son arrived by elective caesarian section (I'm only 4'7", it wasn't for coeliac reasons), and was 6lb 2oz. This is considered small, but he was not as small as my eldest daughter, who weighed in at 5lb.

She was born to me, as an undiagnosed coeliac. I cannot get it confirmed, but there is definitely a strong suspician that my coeliac caused her low birth weight.

Time will tell for me, I'm currently expecting our third. This time, I've been gluten free for three years and I have never felt better.

As I said, I do know what you are going through. If you need to catch up, you can always drop a comment here.

Take care

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