Why is this happening to me?

by Shayla Nyberg-Sutton
(Sioux Falls, SD, USA)

My story starts all the way back in my freshman year of high school. I started feeling sick to my stomach a lot and found myself vomiting almost on a daily basis. For a while, I just brushed it off my shoulders thinking I had some bug or something. The situation went on for a while and eventually I was sick of dealing with it, and I decided to go to the doctor. They told me I just had a stomach flu bug. So once again I brushed it off.

I would like to say that things got better, but they didn’t. I went to doctor after doctor, and they always told me the same thing. "Just the stomach flu." I have had my thyroid checked, and I’ve been tested for diabetes and those tests always came back negative. So I lived with it.

When I moved to Mitchell for college, it just seemed to be getting worse. The vomiting used to be just in the mornings but now it was any time of the day and sometimes more than once a day. But still not EVERY day. I continued to just live with it.

My last year of college I decided I had had enough. I went to a local doctor that I had seen a couple of times before. By this time I had started vomiting up blood, and it just wasn’t fun. I hated it, to say the least. The doctor I saw in Mitchell told me that I had a bleeding ulcer but other than telling me that he did nothing for me. So I continued to live with the pain of vomiting up blood. After I had finished college, I moved back to Sioux Falls and these symptoms just continued to escalate. I started vomiting daily multiple times. You would think after all the vomiting I had done I would be dropping weight like crazy. On top of vomiting every day, my immune system seemed to start failing. I found myself getting sick a lot more often, and it was very hard to get over these illnesses. Anything from the common cold to Influenza B. It sucked.

Having my mom at my side what the only thing that was keeping me from going insane. I missed more days in college than I ever did in high school, and eventually it started to effect my job. I started missing lots more days of work. I felt like a total hypochondriac, and it seemed that everyone I knew thought so as well. Including my mother. The fact that my own mother thought I was over exaggerating. Talk about a knife in the heart. I just couldn’t seem to convince her that it wasn’t in my head and
that something was wrong. I continued to live with all these problems because it seemed no one believed me. Not any doctors and not my family and friends.

Finally, almost seven years after the start of these symptoms, I saw a doctor that I had never seen before. She immediately ordered a battery of different tests. Once again my thyroid and diabetes tests came back just fine, but it turns out that my vitamin levels were horribly low, which lead her to order one more test. The one that would change my life forever if it came back positive.

And it did.

I received the phone call that said my Celiac number was severely high. My heart sank, and I began to cry. I had never heard of such a thing, but I knew it couldn’t be good. What is Celiac’s why is this happening to me? What did I do to deserve this?

She told me that it wasn’t a sure thing and that I would have to see a Gastroenterologist (a stomach specialist). Great, let's keep adding to the pile of bills that I already had. So I made the appointment and started researching this Celiac Disease. And all I could do was cry. All of a sudden it happened, my biggest fear in life came true, and I was more overwhelmed than I had ever been before. What was I going to do? I have an incurable disease known as Celiac Disease. Now I know this disease will not kill me but when your whole life revolves around food and its what you love to do and then all of a sudden you can’t do it anymore. I cried for days.

So here I sit, writing this story of my adventure of medical problems. I am crying again as I am forced to relive everything that has happened in these last seven years. And it has finally occurred to me that even though this will last for the rest of my life and it's not the most fun thing I have ever had to do but its something that I need to do for me. I still find myself sick but not near as often as I was before. I am learning that there is wheat in almost everything on this planet and that it’s a very expensive road as well. But I am doing my best to continue living my life to the fullest every day. I’m going to figure this out, and eventually I'm going to be happy once again.

Thank you to everyone that has been there for me throughout this hellish ordeal. My heart is overwhelmed with gratitude to all of you. You know who you are. I love you! Thank you again!

Shayla Nyberg-Sutton

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Oct 06, 2014
Thank you all
by: Shayla

Thank you all for your Comments. It means a lot to me that I could share my story and you find a light at the end of an inanely black tunnel.

Since written, I still continue to struggle. Have had surgery on my hand (in celiac related). Now I have found out I have a degenerative disc disease that has a higher risk to attack for celiac patients.

It's a struggle everyday to do anything, including sit, stand, lay bend. My lower back is literally crippling me. But I still keep a positive attitude and mind. I think that living one day at a time is the only way to do attack this, so that's what I'm gonna do.

Thank you all for reading and your comments!
Shayla Rae

Feb 15, 2014
Finally Someone felt like myself
by: Betty Cumberledge

This story hit home for me. Everything in this story I have been through as well.

I felt like no one believed me that was so sick, I would vomit everyday and could not do my daily routines.

Finally I found out about this disease on my own and started a gluten free diet and it changed my life. My daily vomiting has stopped and my energy is coming back, and I know what it feels like to have people think you are crazy, we really do have something wrong with us. I'm just happy my life is getting back to somewhat normal again.

Aug 28, 2011
At last after so many years an answer!!
by: Tina

I was in a similary situation,for almost 20 year I was sick with a variety of stomach problems.

I got 3 gastroscopy, 2 colonoscopy and so many blood test but none of them helped to found out my problems I was told that I got a "nervous stomach".

I kept getting worse. Every time I ate got pain, spams, gas, nausea and in the morning a mild diarrhea. I started to feel exhausted even to make 50 meter walk, and one day I was feeling so sick I went to an ER only to be told that everything was OK.

I kept going on like that, and not trusting doctors anymore, but one day a friend feeling pity for me asked if I every heard about alternative medicine and a specific branch called iridology. She knew people who couldn't find an answer to their problem and at last with iridology they got the answer.

I said "I have nothing to lose and I want to try" so she gave me the address and I took an appointment.

You wouldn't believe it!! at last someone was telling me where my problems were coming from - Gluten intolerance- because of that my body was short in vitamins and minerals. After only after a few days on a gluten free diet I started to feel better and all my problems, after a few weeks, disappeared and I stopped to take nexum!

I'll stay gluten free diet for the rest of my life...sorry for my English, I can read it but not write it...take care

May 28, 2011
You're not alone
by: Eve

Hey there, I have had symptoms for about 5 yrs; but never vomiting. I have not had a gluten test. But that is my next step. I know it is a minimalist diet that I will have to keep on. I don't think it is expensive, just healthier. No processed anything basically. Eat eggs, raw beans, milk. I cannot imagine not having coffee or sugar either. But if I knew it would make me throw up, no way would I eat it.

Also, you should start taking prenatal vitamins to bring your vitamin levels up. I have done this for years too. It will all work out for the better now you have a knowledge of what is wrong. All you have to do is take a deep breath and start small. Don't let it overwhelm you. It could have been so much worse.

blessings to you, Eve

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